HPCCV Director’s Annual Report

December 2009

 

 

          At the close of my 24th year as Coordinator--then Director-- of the Hospice & Palliative Care Council of Vermont, it has been my privilege to serve in this very part-time position (.2 FTE), facilitating the education and communication of the hospice community in Vermont.  In our small state of just over 620,000 people we create a network of non-profit rural and small-city hospices that cover every community in the state.  In 2008 we cared for more than 1400 hospice patients and their families—an increase over the previous year, and we expect 2009 numbers to show a similar increase.  Most of our hospice programs are part of the local not-for-profit home health or visiting nurse association, and the two volunteer hospices work closely with their local agencies.  A third volunteer hospice has been recently consolidated with the local VNA, collaborating to bring comprehensive care to their community.  This is a unique collaboration and safety net for the critically ill, the dying and their families in Vermont that is unduplicated in any other state in America.

 

          The Hospice Council of Vermont was incorporated and received its 501C3 non-profit status in 1985, after two years of study of the needs of dying Vermonters and their families, by the Vermont Ecumenical Council.  HCV quickly expanded to include all of the home care agencies and volunteer hospice groups in the state, and helped each train staff and achieve certified Hospice Medicare Benefit status and serve patients in every corner of Vermont.

 

          In recent years many of our organizations have added the special category of “palliative care program” to their services to include those patients with life-threatening illnesses but who are in active treatment and not hospice-eligible, so that they might receive the same expertise in pain and symptom control, with seamless staff support.  In reflection of this growth in care, the Hospice Council of Vermont voted to change its name and status to The Hospice & Palliative Care Council  of Vermont in 2002. This expansion of our good care has encouraged hospitals to develop their own palliative care programs and many have joined HPCCV as well.  Our Annual Conference at Lake Morey was held in June for the 18th year and again drew more than 270 people to hear excellent speakers and share in a day of rejuvenation and education and re-dedication for this demanding work, which many of us feel is a vocation as well. Evaluations reflected a superb day of medicine, music, compassion and hope for all. 

 

At the Conference, We also honored and celebrated HPCCV President, Diana Peirce, as she heads for retirement after more than 15 years of dedicated and insightful leadership of the Council.  Her steadfast and heartfelt commitment to improving the lives of the dying and supporting the survival of the living and those who care for them has carried us all.  Diana will be sorely missed in Vermont, though California and the Nation will benefit from her future career in teaching and writing.  We look forward to inviting her back as a presenter at our Annual Conference when her book is ready for signing!

 

          Many times a year we gather from all corners of Vermont to exchange ideas, brainstorm problems and share up-to-the-minute insights into government and insurance issues that effect hospice and palliative care.  In specialty sub-groups—Clinicians, Volunteer Coordinators, and Bereavement Coordinators meet to offer peer support, compare issues, train new staff, and expand our expertise.  We also gather quarterly to meet as a Board of Directors and create position statements on current issues, set our conference agenda, and cheer each other on in this challenging work.  This collaboration has been critical in adapting to the new Medicare Hospice Conditions of Participation and weathering audits.

         

The www.HPCCV.org website has enabled us to communicate in another way and connect to larger organizations such as the National Hospice & Palliative Care Organization, of which we are a member, and the Vermont Assembly of Home Health Agencies, which gives us free office space and support as part of their mission.  We are extremely grateful for the generosity of Peter Cobb and Lindy Hatcher and the Board of VAHHA for their support these many years.

 

          We continue to collaborate with other organizations with similar goals of supporting the critically ill, the dying and their families, including the Vermont Medical Society, the Vermont Ethics Network, the North Eastern Vermont Area Health Education Center, the Vermont Program for Quality in Health Care, and others.  HPCCV President, Diana Peirce and other members have regularly testified before the Vermont Legislature on legal and healthcare issues affecting us all.

 

          It has been the goal of HPCCV to keep a small budget and not detract from the local fund-raising efforts, which all hospices must do in their own communities in order to survive.  Yet, through good management and support, we have been able to put aside nearly 10% of our annual $25,000 budget to create a new partnership with a hospice in Africa and donate these funds.  This has been done through the NHPCO and its affiliate the Foundation for Hospices in Sub-Saharan Africa and with hard work of Hospice Volunteer Services member, David White, who has represented us in Tanzania.   We thank those who have donated funds and join us in exploring this partnership, which you can read about and see photos on our www.HPCCV.org website.

 

          As Director, I create many documents which you have received or may review at any time—Board  & Meeting Minutes, Treasurer’s Reports, Annual Budget, Conference Budget & Evaluations,  Annual Surveys, and website Events, Specialty Reports, etc.  As you know, I also work nearly full-time as Bereavement Coordinator for Central Vermont Home Health & Hospice and I teach in many places.  This grounding in clinical issues and the concerns of our patients and their families gives me a special insight many organization directors do not have.  It also limits the amount of time I have available for HPCCV.  As long as it suits the needs of the organization to sustain this dual role—I am honored to do so, and I am eternally grateful for the privilege of working with so many dedicated, talented, and compassionate people in the service of the ill, the dying and bereaved.  Below is a list of the teaching sites, to which I have brought the message of excellent hospice and palliative care for all.

 

Respectfully Submitted by

Virginia L. Fry, HPCCV Director

 

2009 Teaching sites: Lamoille Home Health & Hospice, Vermont Health Care Association, Vermont Family Network, Vermont Student Assistance Counselors, Johnson State College (x5), Norwich University, Otter Valley School, Washington County Schools, Stowe High School, Sterling Services, Newport AAA, Camp Knock Knock, VT Mental Health Counselors, UVM Medical School’s Palliative Care Week, U. Conn Medical School’s Master Therapists Series,  Community Program Innovations in Billerica, MA, Exeter Hospital, New Hampshire, Hospice of Lancaster PA, Ricam Hospiz, Germany.